Latest Activity

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    Megan Bellavance
    Megan Bellavance commented on the group Connecticut Chapter's wall:
    Does anyone know if there will be an annual picnic this year?
    3 days ago
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    David Kenney
    David Kenney commented on the group SMA Type III's wall:
    No problem Amy, just give me a message or post on my wall, I'll be happy to answer any questions about my experiences!
    4 days ago
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    Amy Osborn
    Amy Osborn commented on the group SMA Type III's wall:
    Thanks David! I will certainly look into that company, He doesn't have a wheelchair yet, I was hoping for an alternative for now as he still walks If you're open to it I would love to talk to you More about your life experience so I can help Paul ...
    4 days ago
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    Megan Bellavance
    Megan Bellavance commented on the group Connecticut Chapter's wall:
    Hi! My name is Megan and our daughter has SMA type III. We live in Glastonbury and I am looking to connect with any one who is even relatively close to us. We don't know anyone who is experiencing this and I would love some support and thoughts.
    7 days ago
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    Megan Bellavance
    Megan Bellavance is now a member of New England Chapter.
    7 days ago
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    Megan Bellavance
    Megan Bellavance is now a member of Connecticut Chapter.
    7 days ago
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    David Kenney
    David Kenney commented on the group SMA Type III's wall:
    Hi Amy, I'd take a look at the SmartDrive MX1+ by Max Mobility, it attaches on the back of a manual wheelchair and gives the user power when needed. You also have the Team Hybrid Viper attachment but I don't think it would fit a smaller wheelchair ...
    9 days ago
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    Amy Osborn
    Amy Osborn commented on the group SMA Type III's wall:
    Looking for some input on equipment for my son he is type 3 and 6 years old. I am loking for something that will give him some independence, he can't ride or pedal a regular bike, and I am looking for something motorized that will give him the ...
    9 days ago
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    Rosario Ferraro
    Rosario Ferraro commented on Dawn's picture.
    Questo piccolo è meraviglioso. Questi bambini non meritano tutto questo. un abbraccio fortissimo ed un bacio.
    12 days ago
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    Dawn
    Dawn has uploaded 1 new photos.
    15 days ago
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    Dawn
    Dawn has uploaded 1 new photos.
    15 days ago
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    Dawn
    Dawn has uploaded 1 new photos.
    15 days ago
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    Dawn
    Dawn has uploaded 1 new photos.
    15 days ago
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    Dawn
    Dawn any sma parents or grandparents in colorad springs co..would love to connect for and be support
    15 days ago
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    Dawn
    Dawn keep your faith..my grandson is sma1..may 22nd is his two year old milestone..he has a tracheotomy and feeding tube..hes amazing happy..talks through his trache..pray believe god for healing..love to you all
    15 days ago
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    Jon Ferguson
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    katie sewell
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    Sarah Lobene
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    Tracy Cramer
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    Tanner Singh
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    Stephanie Erbacher
    Stephanie Erbacher is now a member of Iowa Chapter.
    20 days ago
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    B Abdul
    B Abdul commented on the group SMA Type I's wall:
    My 19 month son has a j-tube. He was on similac until his first birthday and since then he's been on Neocate Jr. Is it time that I change it to or add any other formula or home made juices? I talk to his nutritionist and they don't want to change ...
    20 days ago
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    Michelle Farrar
    Michelle Farrar has accepted Jordan Renee's friend request.
    21 days ago

Newest Members

Newly Diagnosed

For Newly Diagnosed Information and Care Packages call us at (800) 886-1762 or email infopack@fsma.org

Latest Forum Activity

Welcome

Everyone at Families of SMA is extremely excited to offer an enhanced FSMA Community site to replace the forums section on our website. This community site adds a new feature that allows families from all over the world to connect with each other to chat, organize, and share stories, photos, news, and information. Just log in and start sharing. Knowing there are others out there fighting alongside you is incredibly empowering, and the advice and personal anecdotes can make a real difference in the lives of you and your family.

Newest Groups

  • MN Chapter members
  • SMA in the UK
  • Carolinas Group