Quick Help - Home
This tab allows you to quickly and easily get a snapshot of all the latest network activity. The homepage has an activity feed which constantly updates with new content that has been added by our members. The widgets down the right of the page give you snippets of information from various sections of the network.
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The sidebar (on the side of the page) is accessible from any page in this network and gives you instant access to your messages, profile settings, online friends and upcoming events. Don't forget to set your status too so members know what you are up to!
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Featured Announcement
Latest Activity
- 8 hours ago
Colleen McCarthy O'Toole commented on nate lee's wall:Hi Nate, It is great to see you on the site! No, your post is all still there. I am assuming this is the post that you are thinking of: http://www.smacommunity.org/forum/topic/114 Is there anything that we can do to help the family that is ...
- 8 hours ago
Kate Ramsay commented on the group SMA Type II's wall:Info request on g-tube! My daughter, Greer, is 2 yrs. and I've been doing battle with keeping her off a g-tube. I'm thinking its a losing battle. She won't even and for the past 2 days, I can't even get her to take in the full 3 cans of Pediasure ...
- 18 hours ago
Nancy Kirk commented on the group SMA Type II's wall:Megan is a Type 2 and 3 years old. We have the kidwalk, which is good for as a stander and she can walk a bit in it with her Kafos, but she gets tired in it fast and it takes her awhile to move somewhere in it. I really, really, really (did I ...
- 22 hours ago
nate lee commented on Colleen McCarthy O'Toole's wall:Hey Colleen. I had posted a link to an important discussion that took place on SMAspace a while back - someone was asking where they could find information about something care specific. It looks like that comment was deleted. Can you confirm? I ...
- 1 day ago
Kate Ramsay commented on Jannette Gomez's wall:Hi Jannette, It's nice to "meet" you! I just joined SMA Community Connections myself. My daughter, Greer, was recently diagnosed with TypeI approaching Type II. It took a while to process before I could connect but I'm so glad I did. This site ...
- 1 day ago
Kate Ramsay commented on lee min young's wall:Hi Lee Min! Your son is so beautiful! I'm new to all this too. My daughter was diagnosed in July. It's a LOT to take in. It all seems unreal and all too real at the same time. Is there a Chapter near you? When my daughter was diagnosed, I ...
- 1 day ago
denise thompson commented on francis Hausz's wall:two grandchildren, that is a heavy load ---- my son is 21 yrs. old sma II/III ----- it gets harder the older i get, i will be 50 yrs. soon --- my thoughts are with you
- 1 day ago
denise thompson commented on Carice Smith's wall:my son is 21 yrs. old sma II/III he had spinal fusion 4 yrs. ago but has had pain since as you know life just keeps getting harder and i am glad for families of sma if it wasn't for this site i would never be connected to other ...
- 1 day ago
denise thompson commented on lukasz wysocki's wall:nice to hear from poland ---- my father's last name was Horowski and my mother's maiden name was Rakowski. ----- my son is 21 yrs. old with sma II/III ----- he is having pain since his spinal fusion 4 yrs. ago --- makes life hard but i am ...
- 1 day ago
denise thompson commented on warren jones's wall:our sma community is with you --- it is a lonely feeling, i hope you have a lot of family and friends ---- you will probably spend a lot of time trying to find doctors that know about sma ---- it is worth it ----- ask the expert on ...
- 1 day ago
Ariana Cloutier commented on the group Teen Talk:)'s wall:hey guys! Thanks for joining this group, means alot to me! I think this is gunna be really fun to get to know each other!
Newest Members
Latest Forum Activity
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Author: bjmirabilePosted: Oct 10, 2007My daughter, Katie (7 years old, type 2) has tongue fascilations also. I ... View Forum4 days ago by Families of SMA -
hi, my son Fiorello is 20 months old. we have such problems with (Pseudonomas). can someone help us?(we have used Ciprox, and ... View Forum8 days ago by ivano rizzuto -
Ok thanks for the info Colleen View Forum9 days ago by Catherine Gaynor
Welcome
Everyone at Families of SMA is extremely excited to offer an enhanced FSMA Community site to replace the forums section on our website. This community site adds a new feature that allows families from all over the world to connect with each other to chat, organize, and share stories, photos, news, and information. Just log in and start sharing. Knowing there are others out there fighting alongside you is incredibly empowering, and the advice and personal anecdotes can make a real difference in the lives of you and your family.








