SMA Community Connections

Hi Nate, It is great to see you on the site! No, your post is all still there. I am assuming this is the post that you are thinking of: http://www.smacommunity.org/forum/topic/114 Is there anything that we can do to help the family that is ...

Info request on g-tube! My daughter, Greer, is 2 yrs. and I've been doing battle with keeping her off a g-tube. I'm thinking its a losing battle. She won't even and for the past 2 days, I can't even get her to take in the full 3 cans of Pediasure ...

Megan is a Type 2 and 3 years old. We have the kidwalk, which is good for as a stander and she can walk a bit in it with her Kafos, but she gets tired in it fast and it takes her awhile to move somewhere in it. I really, really, really (did I ...

Hey Colleen. I had posted a link to an important discussion that took place on SMAspace a while back - someone was asking where they could find information about something care specific. It looks like that comment was deleted. Can you confirm? I ...

Hi Jannette, It's nice to "meet" you! I just joined SMA Community Connections myself. My daughter, Greer, was recently diagnosed with TypeI approaching Type II. It took a while to process before I could connect but I'm so glad I did. This site ...

Hi Lee Min! Your son is so beautiful! I'm new to all this too. My daughter was diagnosed in July. It's a LOT to take in. It all seems unreal and all too real at the same time. Is there a Chapter near you? When my daughter was diagnosed, I ...

two grandchildren, that is a heavy load ---- my son is 21 yrs. old sma II/III ----- it gets harder the older i get, i will be 50 yrs. soon --- my thoughts are with you

my son is 21 yrs. old sma II/III he had spinal fusion 4 yrs. ago but has had pain since as you know life just keeps getting harder and i am glad for families of sma if it wasn't for this site i would never be connected to other ...

nice to hear from poland ---- my father's last name was Horowski and my mother's maiden name was Rakowski. ----- my son is 21 yrs. old with sma II/III ----- he is having pain since his spinal fusion 4 yrs. ago --- makes life hard but i am ...

our sma community is with you --- it is a lonely feeling, i hope you have a lot of family and friends ---- you will probably spend a lot of time trying to find doctors that know about sma ---- it is worth it ----- ask the expert on ...

hey guys! Thanks for joining this group, means alot to me! I think this is gunna be really fun to get to know each other!