Latest Activity

Newest Members

Newly Diagnosed

For Newly Diagnosed Information and Care Packages call us at (800) 886-1762 or email

Latest Forum Activity


Everyone at Families of SMA is extremely excited to offer an enhanced FSMA Community site to replace the forums section on our website. This community site adds a new feature that allows families from all over the world to connect with each other to chat, organize, and share stories, photos, news, and information. Just log in and start sharing. Knowing there are others out there fighting alongside you is incredibly empowering, and the advice and personal anecdotes can make a real difference in the lives of you and your family.

Newest Groups

  • MN Chapter members
  • SMA in the UK
  • Carolinas Group